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Thread: I have been diagnosed with Stage 3 Multiple myeloma

  1. #161
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    Better to be already passed than passing.

    Hang in there man, and kick some ass!

    Help them, for they know not that which they do not know!
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    Oh Karen, you made me smile today.

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    Quote Originally Posted by Ninja Performance View Post
    Guess the Cancer wasn't enough, Just got home from another 3 day visit. Blood in urine and bad pain in both kidneys started thursday. CT showed what they think was stones that already passed. Blood is clearing up and no infection so I got to come home today.

    -Chris
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    Keep up the fight Chris, you can do this!

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    Just a couple of thoughts. First, have you tried Zofran for the nausea? Both my wife and I have serious nausea problems from the meds we take now and I had problems when I was doing chemo. Different meds work better for different people. Ask your Dr.; I'm sure he would be happy to try Zofran. Sheri and I both use it and it helps us a lot better than Phenergan.
    Secondly, almost every drug manufacturer has a program to provide free or VERY LOW COST prescription medications.
    Hang in there..........................3 steps forward, 2 steps back. And some days, it's two forward and three back. Our prayers are with you both.

  6. #166
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    Luckily the very new meds I am using for Multiple Myeloma, Revlimid and Velcade, don't have severe stomach issues. I get some heartburn late at night but that's about it. Appetite is still good.
    And yes, sometimes it seems like 1 forward 2 back but in my mind I am moving in a forward direction and that helps my mind overcome depression. That and all the support I have gotten. Especially from Vicki. She has been my rock. And I know there has been times where things looked very bad and she was very scared inside. But she was strong for me. I am lucky to have her.

    -Chris

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    Last 2 days have been rough. Lots of pain. Bleeding from kidneys again. Kidneys hurt. They are not sure why. They think stones but think part of the clotting cascade (factorX) issue I have my be the cause.

    Good news, yesterday I got another Velcade shot (chemo) which really help with pain/inflammation. They checked urine and blood numbers. My Hemoglobin is still up at 10.1 but even better my Platelets are up to 170,000. Which is great. Even with chemo killing good cells my body is making lots of blood.

    -Chris

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    Good news, that.

    The other must be stones - small consolation - but still.
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    Quote Originally Posted by j2k4 View Post
    Good news, that.

    The other must be stones - small consolation - but still.
    They sure don't seem small on the way out !!!

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    I'm sorry to hear what you've been going through, Chris. I can't imagine what you are feeling, physically and emotionally.

    I know that everything helps, but financially speaking, what are you looking at? You said that chemo is $8,000/mo, and the marrow transplant is around $200,000.. How many months of chemo are your doctors thinking you need? If someone could write you a check for $XXX,XXX, what would that amount be to cover it all? (or at least the majority of it)
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